Director Tomasz Sliwinski chronicles his family's life during the few months following the birth of their new born child who suffers from a very rare and incurable disease, the Ondine's curse (also known as congenital central hypoventilation syndrome or CCHS) which prevents breathing during sleep and requires a lifetime mechanical ventilation system.... (Full plot summary below)
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Director Tomasz Sliwinski chronicles his family's life during the few months following the birth of their new born child who suffers from a very rare and incurable disease, the Ondine's curse (also known as congenital central hypoventilation syndrome or CCHS) which prevents breathing during sleep and requires a lifetime mechanical ventilation system.
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